Statistics about Rett's syndrome


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About statistics: This page presents a variety of statistics about Rett's syndrome. The term 'prevalence' of Rett's syndrome usually refers to the estimated population of people who are managing Rett's syndrome at any given time. The term 'incidence' of Rett's syndrome refers to the annual diagnosis rate, or the number of new cases of Rett's syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

Prevalence and incidence statistics for Rett's syndrome: (see also prevalence and incidence page for Rett's syndrome)
  Incidence (annual) of Rett's syndrome: 1 in 10,000-15,000 live female births
  Incidence Rate: approx 1 in 10,000 or 0.01% or 27,200 people in USA [about data]
  Prevalance of Rett's syndrome: The syndrome affects approximately 1 in every 10,000-15,000 live female births, with symptoms usually appearing in early childhood — between ages 6 and 18 months. 1
Society statistics for Rett's syndrome
  Hospitalization statistics for Rett's syndrome: The following are statistics from various sources about hospitalizations and Rett's syndrome:
  • 0.001% (158) of hospital consultant episodes were for Rett’s Syndrome in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 97% of hospital consultant episodes for Rett’s Syndrome required hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 68% of hospital consultant episodes for Rett’s Syndrome were for men in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 32% of hospital consultant episodes for Rett’s Syndrome were for women in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 19% of hospital consultant episodes for Rett’s Syndrome required emergency hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 15.9 days was the mean length of stay in hospitals for Rett’s Syndrome in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 2 days was the median length of stay in hospitals for Rett’s Syndrome in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 15 was the mean age of patients hospitalised for Rett’s Syndrome in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 32% of hospital consultant episodes for Rett’s Syndrome occurred in 15-59 year olds in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 0% of hospital consultant episodes for Rett’s Syndrome occurred in people over 75 in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 0% of hospital consultant episodes for Rett’s Syndrome were single day episodes in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 0.002% (1,224) of hospital bed days were for Rett’s Syndrome in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
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Footnotes:
1. excerpt from NINDS Rett Syndrome Information Page: NINDS

Last revision: June 12, 2003

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