Basic Summary for Lupus


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Main name of condition: Lupus
Other names or spellings: Systemic Lupus Erythematosus, Lupus Erythematosus, SLE


What is Lupus?
  Brief description of Lupus: Autoimmune disease with numerous effects on various organs and linings.
  Parent types of Lupus: Autoimmune diseases, Rheumatic conditions, Systemic disorders, Connective tissue disorders, Diseases contagious contagious mother-to-fetus
  Types of Lupus: Discoid lupus erythematosus, Drug-induced lupus, Neonatal lupus
How many people get Lupus?
  Prevalance of Lupus: 1.4 million people in the United States, 1 in 85 (NWHIC)
  Prevalance Rate of Lupus: approx 1 in 194 or 0.51% or 1.4 million people in USA [about data]
  Prevalance of Lupus: Lupus occurs in 1 out of 2,000 Americans and in as many as 1 in 250 young, African-American women.1 ... Lupus affects 1.4 million people in the United States (1 in 85).2
Who gets Lupus?
  Patient Profile for Lupus: Young adults, typically 15-44; can sometimes occur in childhood or later in life.
  Profile for Lupus: Anyone can get lupus. But 9 out of 10 people who have it are women. African American women are three times more likely to get lupus than white women. It's also more common in Hispanic/Latino, Asian, and American Indian women. 3 ... Although SLE usually first affects people between the ages of 15 and 45 years, it can occur in childhood or later in life as well. 4
  Gender Profile for Lupus: Women 9:1 (NWHIC); 90% are women aged 20-50.
  Gender Profile for Lupus: Ninety percent of lupus patients are women, striking most often between the ages of 15 and 44.2
  Race Profile for Lupus: African American women 3 times as common as Caucasian women. Also more common in Hispanic, Asian, and Native American people.
  Race Profile for Lupus: Lupus is three times more common in black women than in white women and is also more common in women of Hispanic, Asian, and Native American descent.2
How serious is Lupus?
  Prognosis of Lupus: Normal lifespan possible for many patients. Remissions and relapses common. 5-year survival about 97%; 10-year survival about 90%. (NWHIC).
  Prognosis of Lupus: The prognosis for lupus varies widely depending on the organs involved and the intensity of the inflammatory reaction. The course of lupus is commonly chronic and relapsing, often with long periods of remission. Most patients with lupus have a normal lifespan with periodic doctor visits and treatments with various drugs. Many of the more serious problems do not affect most patients. Death is usually caused by renal failure or infection. 5 ... The good news is that with the correct medicine and by taking care of themselves, most lupus patients can hold jobs, have children, and lead full lives. 6
  5-year survival rate for Lupus: It is estimated that 97 percent of individuals with SLE live at least five years7
  10-year survival rate for Lupus: 90 percent live at least 10 years after diagnosis7
  Complications of Lupus: see complications of Lupus
What causes Lupus?
  Class of Condition for Lupus: autoimmune
  Causes of Lupus: see causes of Lupus
  Risk factors for Lupus: see risk factors for Lupus
What are the symptoms of Lupus?
  Symptoms of Lupus: see symptoms of Lupus
Can anyone else get Lupus?
  Contagion of autoimmunity: generally not; see details in contagion of autoimmune diseases.
How is it treated?
  Specialists for Lupus: Rheumatologist, Clinical immunologists, Nephrologists, Hematologists, Dermatologists, Neurologists
  Treatments for Lupus: see treatments for Lupus
  Prevention of Lupus: see prevention of Lupus
  Research for Lupus: see research for Lupus
Society issues for Lupus
  Hospitalization statistics for Lupus: The following are statistics from various sources about hospitalizations and Lupus:
  • 0.032% (4,075) of hospital consultant episodes were for systemic lupus erythematosus in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 90% of hospital consultant episodes for systemic lupus erythematosus required hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 11% of hospital consultant episodes for systemic lupus erythematosus were for men in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 89% of hospital consultant episodes for systemic lupus erythematosus were for women in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 22% of hospital consultant episodes for systemic lupus erythematosus required emergency hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 8.8 days was the mean length of stay in hospitals for systemic lupus erythematosus in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 4 days was the median length of stay in hospitals for systemic lupus erythematosus in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 41 was the mean age of patients hospitalised for systemic lupus erythematosus in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 81% of hospital consultant episodes for systemic lupus erythematosus occurred in 15-59 year olds in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 2% of hospital consultant episodes for systemic lupus erythematosus occurred in people over 75 in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 47% of hospital consultant episodes for systemic lupus erythematosus were single day episodes in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 0.03% (15,550) of hospital bed days were for systemic lupus erythematosus in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)


Footnotes:
1. excerpt from Understanding Autoimmune Disease: NIAID
2. excerpt from Lupus Fact Sheet: NWHIC
3. excerpt from The Many Shades of Lupus: NIAMS
4. excerpt from Handout on Health Systemic Lupus Erythematosus: NIAMS
5. excerpt from NINDS Neurological Sequelae Of Lupus Information Page: NINDS
6. excerpt from Lupus: NWHIC
7. excerpt from Connective Tissue Diseases: NWHIC

Last revision: June 2, 2003

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