Statistics about Cystic Fibrosis

About statistics: This page presents a variety of statistics about Cystic Fibrosis. The term 'prevalence' of Cystic Fibrosis usually refers to the estimated population of people who are managing Cystic Fibrosis at any given time. The term 'incidence' of Cystic Fibrosis refers to the annual diagnosis rate, or the number of new cases of Cystic Fibrosis diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

Prevalence and incidence statistics for Cystic Fibrosis: (see also prevalence and incidence page for Cystic Fibrosis)
  Prevalance of Cystic Fibrosis: 30,000 Americans (NIDDK)
  Prevalance Rate: approx 1 in 9,066 or 0.01% or 30,000 people in USA [about data]
  Incidence (annual) of Cystic Fibrosis: 2,500 babies annually USA; 1 in 3,000 Caucasian babies
  Incidence Rate: approx 1 in 108,800 or 0.00% or 2,500 people in USA [about data]
  Prevalance of Cystic Fibrosis: Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder, making CF one of the most common lethal genetic diseases in Caucasians. Overall, there are 30,000 Americans with CF, and an estimated 8 million people carry one copy of the defective gene that causes the disease. ¹
  Prevelance statistics about Cystic Fibrosis: The following statistics relate to the prevalence of Cystic Fibrosis:

8 million genetic carriers in USA (NIDDK)
About 30,000 people with cystic fibrosis ("Orphan Products: Hope for People With Rare Diseases", By Carol Rados, FDA Consumer magazine, November-December 2003 Issue)

Death and mortality statistics for Cystic Fibrosis:
Deaths from Cystic Fibrosis: 485 deaths (NHLBI 1999)
Death statistics for Cystic Fibrosis: The following are statistics from various sources about deaths and Cystic Fibrosis:

45 people died from cystic fibrosis in Australia 2000 (Australia’s Health 2004, AIHW)

Deaths from Cystic Fibrosis: Lung disease is the usual cause of death in most patients.²

Society statistics for Cystic Fibrosis
Hospitalizations for Cystic Fibrosis: 12,000 (NHLBI 1999)
Hospitalization statistics for Cystic Fibrosis: The following are statistics from various sources about hospitalizations and Cystic Fibrosis:

0.07% (9,211) of hospital consultant episodes were for cystic fibrosis in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
96% of hospital consultant episodes for cystic fibrosis required hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
49% of hospital consultant episodes for cystic fibrosis were men in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
51% of hospital consultant episodes for cystic fibrosis were women in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
42% of hospital consultant episodes for cystic fibrosis required emergency hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
8.7 days was the mean length of stay in hospitals for cystic fibrosis in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
7 days was the median length of stay in hospitals for cystic fibrosis in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
16 was the mean age of patients hospitalised for cystic fibrosis in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
51% of hospital consultant episodes for cystic fibrosis occurred in 15-59 year olds in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0% of hospital consultant episodes for cystic fibrosis occurred in people over 75 in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
25% of hospital consultant episodes for cystic fibrosis were single day episodes in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0.11% (55,516) of hospital bed days were for cystic fibrosis in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)

'

Footnotes:
1. excerpt from Cystic Fibrosis Research Directions: NIDDK
2. excerpt from NHLBI, Facts About Cystic Fibrosis: NHLBI

Last revision: May 26, 2003

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