Statistics about Amyotrophic lateral sclerosis


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About statistics: This page presents a variety of statistics about Amyotrophic lateral sclerosis. The term 'prevalence' of Amyotrophic lateral sclerosis usually refers to the estimated population of people who are managing Amyotrophic lateral sclerosis at any given time. The term 'incidence' of Amyotrophic lateral sclerosis refers to the annual diagnosis rate, or the number of new cases of Amyotrophic lateral sclerosis diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

Prevalence and incidence statistics for Amyotrophic lateral sclerosis: (see also prevalence and incidence page for Amyotrophic lateral sclerosis)
  Prevalance of Amyotrophic lateral sclerosis: 30,000 cases of ALS in America (Robert Packard Research Center at John Hopkins Hospital)
  Prevalance Rate: approx 1 in 9,066 or 0.01% or 30,000 people in USA [about data]
  Incidence (annual) of Amyotrophic lateral sclerosis: 5,000 new cases of ALS in America (Robert Packard Research Center at John Hopkins Hospital)
  Incidence Rate: approx 1 in 54,400 or 0.00% or 5,000 people in USA [about data]
  Prevalance of Amyotrophic lateral sclerosis: affecting as many as 20,000 Americans with 5,000 new cases occurring in the United States each year. 1
  Prevelance statistics about Amyotrophic lateral sclerosis: The following statistics relate to the prevalence of Amyotrophic lateral sclerosis:
  • 20,000 Americans (NINDS)
  • 20,000 cases in the US (Mayo Clinic)
  • 30,000 people have Lou Gehrig’s disease at any one time in the US (ALS Association)
  • Lou Gehrig’s disease is 20% more common in men than in women in the US (ALS Association)
  • 2 per 100,000 people have Lou Gehrig’s Disease at any one time in the US (ALS Association)
  • Lou Gehrig’s Disease usually affects people between the ages of 40 and 70 in the US (ALS Association)
  • 30,000 people have amyotrophic lateral sclerosis at any one time in the US (ALS Association)
  • 2 per 100,000 people have amyotrophic lateral sclerosis at any one time in the US (ALS Association)
  • Amyotrophic lateral sclerosis is 20% more common in men than in women in the US (ALS Association)
  • 90-95% of amyotrophic lateral sclerosis cases is of the sporadic type i.e. no family history of the disease in the US (ALS Association)
  • 5-10% of amyotrophic lateral sclerosis cases is of the familial type in the US (ALS Association)

  Incidence statistics about Amyotrophic lateral sclerosis: The following statistics relate to the incidence of Amyotrophic lateral sclerosis:
  • 5,000 new cases of ALS in USA annually
  • 5 times higher incidence of ALS than Huntington’s disease in America (Robert Packard Research Center at John Hopkins Hospital)
  • ALS incidence equal to that of multiple sclerosis in America (Robert Packard Research Center at John Hopkins Hospital)
  • 5,000 new cases annually in the US (Mayo Clinic)
  • 5,600 new cases of Lou Gehrig’s disease are diagnosed each year in the US (ALS Association)
  • 5,600 new cases of amyotrophic lateral sclerosis are diagnosed each year in the US (ALS Association)

Death and mortality statistics for Amyotrophic lateral sclerosis:
  Death statistics for Amyotrophic lateral sclerosis: The following are statistics from various sources about deaths and Amyotrophic lateral sclerosis:
  • 5 out of 100,000 deaths over 20 caused by ALS in America (Robert Packard Research Center at John Hopkins Hospital)

  3-year survival rate for Amyotrophic lateral sclerosis: 50% live more than 3 years after diagnosis of ALS in America (Robert Packard Research Center at John Hopkins Hospital)
  5-year survival rate for Amyotrophic lateral sclerosis: 20% live more than 5 years after diagnosis of ALS in America (Robert Packard Research Center at John Hopkins Hospital)
  10-year survival rate for Amyotrophic lateral sclerosis: 10% live more than 10 years after diagnosis of ALS in America (Robert Packard Research Center at John Hopkins Hospital)
  Survival rate statistics for Amyotrophic lateral sclerosis: The following are statistics from various sources about the survival rate for Amyotrophic lateral sclerosis:
  • 50% of people with Lou Gehrig’s disease live for at least 3 years after diagnosis in the US (ALS Association)
  • 20% of people with Lou Gehrig’s disease live for at least 5 years after diagnosis in the US (ALS Association)
  • Up to 10% of people with Lou Gehrig’s disease live for at least 10 years after diagnosis in the US (ALS Association)
  • 3 to 5 years is the mean survival for people with Lou Gehrig’s disease in the US (ALS Association)
  • 50% of people with amyotrophic lateral sclerosis live for at least 3 years after diagnosis in the US (ALS Association)
  • 20% of people with amyotrophic lateral sclerosis live for at least 5 years after diagnosis in the US (ALS Association)
  • Up to 10% of people with amyotrophic lateral sclerosis live for at least 10 years after diagnosis in the US (ALS Association)
  • 3 to 5 years is the mean survival for people with amyotrophic lateral sclerosis in the US (ALS Association)


Footnotes:
1. excerpt from NINDS Amyotrophic Lateral Sclerosis Information Page: NINDS

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